Dementia in Canada: Summary from a report by the Canadian Institute for Health Information. Better data. Better decisions. Healthier Canadians reflect the first report
The number
of people living with dementia continues to rise. This increase is due to
growth in Canada’s senior population, which is expected to rise 68% over the
next 20 years. This rise will result in demands on Canada’s health care
systems.
Caring for
seniors with dementia presents many complex issues and challenges, which differ
as the disease progresses:
- Since most seniors with dementia
reside in the community, primary care doctors and unpaid caregivers need
proper support to help them manage dementia care.
- In long-term care, seniors with
dementia continue to experience increased use of restraints and
potentially inappropriate antipsychotics, despite a policy focus that is
helping to improve the trends.
- Seniors with dementia are
hospitalized more frequently and for a longer time. Their longer hospital
stays make them more susceptible to hospital harm, including urinary tract
infections, pneumonia and falls.
This report
uses data and information from a number of sources to highlight dementia’s
impact on Canada’s health systems and on family members or others who provide
care at home. It’s also a part of CIHI’s larger commitment to focus on issues
related to seniors and aging in order to help those who make decisions about
healthcare planning for future needs. The report explores access to and use of
health services such as home care, long-term care or nursing homes, emergency
departments, hospitals and end-of-life care. It also examines young-onset
dementia, family doctor preparedness, and prevention and treatment.
Key findings
- About 1 in 4 seniors age 85+
have been diagnosed with dementia
The population of Canadians aged 65 and older is increasing; as a result, so is the number of people living with dementia.
The
prevalence of dementia more than doubles every 5 years for Canadians aged 65
and older, from less than 1% for those aged 65 to 69 to about 25% for those 85
and older. Dementia is more prevalent among women than men, and the gap
increases with age.
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to How dementia impacts Canadians
- Seniors with dementia who live
at home require support to do so comfortably
About 261,000 seniors with dementia in Canada live outside of publicly funded long-term care or nursing homes. A larger proportion of these seniors have a severe cognitive impairment, exhibit responsive behaviours and show signs of depression than other seniors.
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to Dementia in-home and community care
- Use of antipsychotics and
restraints declining for seniors with dementia in long-term care
In 2015–2016, more than two-thirds of residents in long-term care or nursing homes had dementia. These residents have a higher risk of being given antipsychotics without a diagnosis of psychosis and of being restrained compared with other residents. Policy changes and educational support in this area have led to improvements in many jurisdictions that submit data to CIHI.
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to Dementia in long-term care
- Seniors with dementia wait
longer in emergency departments, are more likely to be admitted and more
prone to harm
Because patients with dementia need complex care, they stay longer in emergency departments, have higher hospitalization rates and have longer hospital stays than other seniors. Longer stays contribute to the fact that 1.5 times as many seniors with dementia experience hospital harm as those without.
- Canadians diagnosed with
dementia before age 65 face unique challenges
Regardless of the type of care received, the proportion of Canadians with young-onset dementia is approximately 3%. Many of these people have rarer genetic forms of the disease. Canadians with young-onset dementia may face more stigma related to the disease and have unique challenges because they are likely still working.
- Family doctors in Canada feel
less prepared than those in other countries to manage care for seniors
with dementia
Caring for seniors with dementia can be complex. Data from the 2015 Commonwealth Fund Survey of Family Physicians shows that only 41% of Canadian doctors feel properly prepared to care for these patients. The survey, which includes international comparisons, found that doctors in countries with national dementia strategies feel the most prepared to care for and to manage care for seniors with dementia.
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to the Family doctor preparedness
- Rates of injuries from falls are
higher for seniors who have dementia and who live in lower-income
neighbourhoods
While all seniors are susceptible to falls, hospitalization rates are 23% higher for seniors with dementia in lower-income neighbourhoods than in more affluent areas. The analysis looks at hospitalizations related to falls by 5 income levels.
- Seniors with a dementia
diagnosis are less likely to receive end-of-life care
Seniors with dementia have a higher mortality rate than other seniors but are less likely to be referred for palliative and/or end-of-life care, which includes proper pain medications and hospice care.
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to Palliative and end-of-life care
- Higher distress, and longer hours
reported by unpaid caregivers
Unpaid caregivers of seniors with dementia spend more time caregiving and face higher levels of distress than those caring for other seniors. CIHI data shows that unpaid caregivers of seniors with dementia spend an average of 26 hours a week caring for their loved ones, compared with 17 hours for caregivers of other seniors.
Of greater
concern, almost twice as many caregivers of seniors with dementia exhibit
symptoms of distress, such as anger, depression or feeling unable to continue
(45% versus 26%).
This section
of the report also includes the stories of 2 caregivers who spoke to us about
the challenges they face in their role.
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to Unpaid caregiver challenges and supports
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