Acquired Brain Injury Day 38

The first day I have missed going to the hospital since Colleen had the Aneurysm burst. I had mixed feelings about missing the day but in the end decided it would be OK to miss one day.

Colleen was going on another shopping trip with her Occupational Therapist to find Christmas decorations. Since the day was nice, Danielle and Adam and the family had convinced me that a day at the beach with the kids would be a good use of my time. 

I talked to Colleen in the morning and she agreed that I should go to the beach. I felt bad but decided that I needed some time to relax. Tomorrow we would be seeing the Dr. and hopefully Colleen would be released and we could make arrangements to get home.

Today I want to talk about Caregivers the unsung hero's of our health care system, here in Australia and back home in Canada. 

In Australia there are 2.86 million informal carers, according to a recent  report for Carers Australia by Deloitte Access Economics – parents looking after children with disabilities and mental illness; husbands looking after wives with dementia; wives looking after husbands with failing hearts; adult children caught in the maw of elder care with its constant crises. Their ‘free’ services are worth $60.3 billion a year. 

In Canada a report in2012, showed about 8.1 million individuals, or 28% of Canadians aged 15 years and older, provided care to a family member or friend with a long-term health condition, disability or aging needs. New  data from the 2012 General Social Survey showed that women represented the slight majority of caregivers at 54%. 

The survey also found that caregiving responsibilities most often fell to those aged 45 to 64, with 44% of caregivers in this age category. Ailing parents were the most common recipients of care, with 39% of caregivers looking after the needs of their own parents and another 9% doing so for their parents-in-law. The least common were spouses, at 8%, and children, at 5%.

For the first time, the survey looked at the types of health conditions requiring care. Age-related needs topped the list, with 28% of caregivers providing care for these needs. Cancer was next at 11%, followed by cardio-vascular disease at 9%, and mental illness at 7%.

Saskatchewan and Manitoba residents report the highest levels of caregiving

The proportion of caregivers varied across provinces, with Saskatchewan and Manitoba having the highest rates of caregiving in 2012 at 34% and 33%, respectively. Also above the national average were Nova Scotia (31%) and Ontario (29%).

In contrast, Quebec had a lower rate than the national average. About 25% of Quebecers reported that they had provided care to an ill, disabled or aging family member or friend in 2012.

Other provinces were not significantly different from the national average.

Providing transportation most common form of care

The most common type of help, provided by 73% of all caregivers, was transportation to run errands, shop, or attend medical appointments. The next most frequent types of activities were house cleaning and meal preparation at 51%, followed by house maintenance and outdoor work at 45%.

Some other tasks were provided by a lower proportion of caregivers, but were done more frequently. These tasks (including medical treatments and personal care, such as help with bathing and dressing) were provided by less than 1 in 4 caregivers. However, two-thirds of those who performed these activities did so at least once 

Impacts greatest for caregivers of children and spouses

The survey also examined the psychological, financial and employment consequences of caregiving among those who provided 2 or more hours of care per week. At greatest risk of negative consequences were caregivers of children and spouses, reflecting their greater intensity of care.

About half of caregivers providing care to children (51%) and spouses (46%) reported at least five symptoms of psychological distress, such as depression, feelings of isolation and disturbed sleep. This compares with 30% of those caring for their own parents and 8% caring for a grandparent.

In addition, 34% of those caring for their child and 33% of those caring for their spouse had to consult a medical professional as a result of their responsibilities, compared with 18% of those who took care of their parents. Caregivers of children or spouses were also more likely to sustain an injury while providing care.

Nevertheless, about 9 in 10 caregivers felt that the experience of providing care was rewarding. Moreover, 7 in 10 also expressed that their relationship with their care receiver had strengthened over the course of the previous 12 months.

One in five caregivers receive financial support

In 2012, 19% of caregivers received some form of financial support. Help from family and friends was the most common at 12%, followed by government programs at 7% and federal tax credit at 5%.

Those caring for their child and spouse received the most financial support from governments. In 2012, 30% of caregivers of children received government financial assistance, compared with 14% of caregivers of spouses and 5% of caregivers of parents.

Even though they received the most support from governments, 28% of those who cared for a child and 20% of those who cared for a spouse experienced financial difficulties. This compares with 7% among those helping their parents.

In addition, 52% of caregivers of children, 42% of caregivers of spouses and 28% of caregivers of parents said that they would have liked more help than they received, financial or otherwise.